My last blog post about Jack’s birthday created quite a stir for someone, not only my last blog, but more than likely all of them. When you expose your life like I have done, there will always be people to criticize, disagree, & be downright hateful. This is not the first time I have received backlash for a post, I’m sure it won’t be the last. The person that commented negatively thinks he or she has told me something, all the person did was make me mad, make me have a sleepless night, & made me wish I knew who it was! There are so many cowards hiding behind a keyboard. Most of the time, these “cowards” have no clue what they are speaking about. I blog to teach people about Dravet Syndrome. I blog to let people know who love & care about our family that often ask how things are going. I blog to ask for specific prayers for challenges our family faces with Jack. I also blog to get Jack’s story out there to see if anyone can offer any type of assistance or helpful advice. I am real, factual, & honest, maybe to a fault, but that’s really no ones business but my own. These are the comments “anonymous” left for me.Jack is not seen as a problem, the rages & violence are THE problem. I know this is nothing he can control at all, who would willingly make the choice to live life that way? Mental illness is real. It is often times something that can not be controlled with medications. Does “anonymous” not have good sense? What family feels safe with a ticking time bomb? I wonder what kind of loophole I could find as “anonymous” suggested to curtail violence? We have exhausted meds, doctoring, the help of social workers & more. All outlets have been explored many, many times. Nothing has helped. Does “anonymous” want to take Jack to the beach for a week on a vacation, to Walmart where he collapses on the floor to get attention, or when he pretend sleeps when he doesn’t get his way & wakes up pounding you in the head or when you’re sitting in the living room minding your own business & he comes in & starts whaling on you. Or how about call “anonymous” when my t-shirt got completely ripped in half when Jack was only 11 when in a violent rage? Did this person not read about the seizures Jack has & the injures that come with them & the violence that comes afterwards? But that’s all normal & deal-able, right? What loophole is there when Jack refuses to bathe for well over a month & no longer brushes his teeth? What loophole may I use when he communicates with predators online that try to con us out of money? What special loophole is there when Jack stays up til 5am & I have to work a 10 hour shift plus I have stay up with him to make sure he doesn’t burn the house down? Sounds like “anonymous” has watched one too many Bugs Bunny cartoons!
I have a simple request, if you don’t like what I post-delete, block, or keep scrolling. Your negativity is not welcomed here.